Wednesday, January 14, 2009

OCD and ADD/ADHD Are Not Character Flaws

You've surely heard or read people saying something like, "I'm so ADD" or "I'm totally OCD." I'll tell you what I am - I'm annoyed when people casually throw around these terms. Sure, I know what they mean. In a self-deprecating way they are saying, "I can be really picky," "I worry about little things a lot," or "I'm easily distracted" (ADD, clinically known as ADHD). They use the terms to indicate a character flaw. Like it's cute. And that's a problem. It is sloppy language that feeds myths.

Sometimes, when I'm feeling brave, I try to straighten out the language. I start with asking if whatever habit they have keeps them from having normal life. The answer has always been "no." So then I tell them that the D in OCD and ADD/ADHD stands for disorder which is a disturbance in normal functioning. And, if the label used was OCD (for Obsessive Compulsive Disorder), I tell them my personal story. My 10-year old son has OCD, having been diagnosed when he was 6-years old after we realized he'd scrubbed a great deal of skin from his hands because he was convinced his germs would kill his little sister. It was summer and he wouldn't play outside or ride his bike because that would bring more germs into the house. And he cried about it.

Here's the thing, I believe this casual labeling perpetuates misconceptions. I'm not an expert in a clinical sense, but I consider myself more educated than the average person when it comes to Obsessive Compulsive Disorder (OCD). So, let me cover a few of the misconceptions.

People who have OCD:
  • Aren't necessarily just fussy about stuff.
  • Aren't curmudgeons.
  • Don't just start acting weird when they are stressed.
  • Don't just simply worry about details.
  • Don't just worry about germs or wash their hands or count and check things. The obsessions can be quite elusive and the compulsions can involve everyday behaviors that you might not associate with an obsession in isolation.
  • Don't always have obsessions and compulsions that are obviously connected to one another from the outsiders perspective.
  • Do have a medical disorder that causes their brains to get stuck on a thought which in turn can prompt them to use behaviors for relief.
  • Are aware of their disorder.
  • Can be charming, successful individuals.
  • Don't have a character flaw...well, at least OCD isn't a character flaw.
I know less about ADD/ADHD even though I also have personal experience with it. In fact, I'm not sure the proper acronym to use. I can tell you this much - Attention Deficit Hyperactivity Disorder does not always involve hyperactivity and it isn't about not being able to pay attention at all. In fact, many ADDers (as they are sometimes known) actually experience a state of hyper-attention, meaning they can focus intently on a particular subject matter to the exclusion or even detriment of other subjects and activities.

In case you're wondering, my son doesn't scrub his hands anymore. He moved on to questions and rituals that look pretty normal to someone who doesn't live with them from day to day. We have the help of a great school, a caring counselor and a skilled neurologist. And, my son is warm, charming, bright and funny - he often finds the humor in his own behavior. And when we he hears someone say, "I'm so OCD," he just looks at me, raises an eyebrow and smiles at me.

Please take the time to learn more. Visit the Obsessive Compulsive Foundation, CHADD (Children and Adults with Attention Deficit/Hyperactivity Disorder) or Additude Magazine.

5 comments:

Mike said...

excellent perspective.

i'm glad he's coping well.

Paula said...

You forgot one adjective to describe your son (whom I have the good fortune to know.) I call him gorgeous - inside and out...

Nila said...

Mike and Paula, I really appreciate your comments. Thanks Paula, for being a fan of my son's.

rogue reporter said...

According to "Driven to Distraction" by Edward M Hallowell, M.D. and John J Ratey, M.D.

ADHD is Characterized by:

# Most common symptoms is a sense of underachieving. No matter how well you are doing, always have a sense of missing a lot in work, school, jobs relationships. That’s what finally brings people in for dx and treatment.
# Difficulty getting organized. Tend to pile up stuff or stack….big piles
# Procrastination and a frenzy of action at deadline. Two times: NOW and NO NOW. The capacity to anticipate not present. Need external structure.
# There is a tendency to have many projects—love the novelty, but lack follow-through.
# Tendency to say whatever comes to mind. Genetically related to ADD is Tourette’s symdrome.
# Tendency to search for high stimulation in order to feel focused. The high stimulus produces endorphins. People with ADD tend to worry a lot and create worry in order to provide a stimulus.
# Intolerant of boredom.
# Easily distracted-hypervigilent and hyperreceptive. Mind goes wherever and enchantment takes it. That occurs to all of us, but for ADD people is frequent and in all setting. BUS STORY
# Tend to be mavericks—don’t follow instructions.
# Tend to be creative, highly intelligent. Treatment should aim to find special talents.
# Impatient—move it along; keep changing.
# Sense of insecurity and mood swings…labile because they do not have mood controls.
# Restlessness-drumming fingers, tapping feet, twirling hair. This is emotion in search of a cause.
# Poor tolerance of frustration. Not knowing and can’t do it. ADD people heat up quickly; need to contain it.
# Have problems with self esteem
# Inaccurate self observation.

from http://faculty.ashrosary.org/faculty/counseling/ADHDNotes.htm

By the way, I personally make light of my diagnosed and medicated disorder for fear of looking like an idiot.

Anonymous said...

Hi, I just happened upon your article on the internet, and I have to say it totally captured some of my sentiments about this issue. I have had OCD for most of my life and when the term is thrown around as some sort of cutesy indiosyncracy, it's a little insulting. Unfortunately, popular culture focuses on the OCD stereotype of washing hands, checking locks, etc. which for many people is only a small part or not a part at all of their symptoms. Thanks for putting words to something I have thought, and I'm sure many people with OCD have felt, for a long time.